Our Medical Confidentiality Lost - All Our freedoms to follow

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Our Medical Confidentiality Lost - All Our freedoms to follow
« on: October 16, 2013, 11:33:45 PM »

Here is a little something being quietly slipped in under the radar which I feel should be forwarded for others
information as this free divulgence of all our personal medical data is commencing in the coming weeks -  if not
already begun.
There are many points here that give me cause for some concern. For instance, it is via “NHS England” who
freely admit that they are in fact, working to a commercial  “business plan” which by definition, must mean
that they are working toward their own profit first and foremost (it could hardly be called a ‘business plan’ if this
were not the case)
Who exactly  are NHS Englands partners, the Health and Social Care Information Centre (HSCIC)??
If partners of NHS England, then they too must meet the commercial definition it would seem.
The link to the relevant website page is this:  http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/care-data.aspx
I’ve copied that web page article below and as you’ll see, it is already ambiguous, if not self-contradictory, since it claims that the
record “will not contain information that identifies you” yet in the following paragraphs they say that if you do not want that
information, “that  identifies you” from being shared outside your GP practice, then you should “talk to your GP” or practice staff
members, hence, the data DOES quite clearly identify you.  Your NI No: and postcode is about as exact an ID as it gets after all.
Those who may, quite reasonably, wish to object to dissemination of their private medical data are being, not so subtly, singled out
as shall we say, “unusual”  people in that they are now asked to approach the practice staff in person in order to make such reasonable
objection against the ‘sharing’ of their private medical data.  Why is that we are now deemed to have “opted in” to such intimate personal
disclosures when in actual fact, most people are not even aware that this is taking place at all?  And why are we being ‘nudged’ into
personally approaching medical staff should we object to this when a simple written notification would suffice?  Obviously, any
member of the public approaching such medical staff with a perfectly reasonable objection and request to opt out would be in an extremely
vulnerable position should even the slightest disagreement or dispute arise as a result
They also risibly, call this a “Secure” system despite all the Hacks and the fact that our govt has already arranged for all this critically
personal data to be stored in “The cloud”  - upon mainly American Servers – and whilst blithely ignoring the fact that the Americans
have passed a law which permits them to trawl through all such records on their ‘cloud’ as they see fit and whilst being immune from
prosecution themselves..  “Secure”?  -  Not Hardly!
Personally, I’ve simply sent a written notification to my practice informing them that I wish to opt out completely.
Perhaps a medically qualified friend could look into this in more detail?


How sharing information in your medical records can help the NHS to provide better care
A modern information system has been developed, which will make increased use of information from medical records with the intention
of improving health services. The system is being delivered by the Health and Social Care Information Centre (HSCIC) and NHS England on
behalf of the NHS. It is important that the NHS can use this information to get a complete picture of what is happening across health and social
care and to plan services according to what works best. The new system will provide joined-up information about the care received from all
of the different parts of the health service, including hospitals and GP practices.
Your date of birth, full postcode, NHS Number and gender rather than your name will be used to link your records in a secure system, managed by
the HSCIC. Once this information has been linked a new record will be created. This new record will not contain information that identifies you.
The type of information shared, and how it is shared, is controlled by law and strict confidentiality rules.
The new system will also provide information that will enable the public to hold the NHS to account and ensure that any unacceptable standards
of care are identified as quickly as possible. Information will help to: find more effective ways of preventing, treating and managing illnesses
guide local decisions about changes that are needed to respond to the needs of local patients support public health by anticipating risks of
particular diseases and conditions, and help us to take action to prevent problems improve the public’s understanding of the outcomes of care,
giving them confidence in health and care services guide decisions about how to manage NHS resources so that they can best support the treatment
and management of illness for the benefit of patients
It is important that you read the leaflet How information about you helps us to provide better care (PDF, 344kb) so that you understand how
information in medical records can be used to improve the way that healthcare is delivered.
If you are happy for your information to be used then you do not need to do anything. But if you have concerns you should talk to your GP.
If you do not want information that identifies you from being shared outside your GP practice, talk to a member of staff at your practice. They will
make a note of this in your medical record. This will prevent your information being used other than where necessary by law, such as in case of
a public health emergency. You will also be able to restrict the use of information held by other places you receive care from. However, this
will not affect the care you receive.
You can change your mind at any time and as many times as you wish. Just speak to your GP practice and ask them to record your wishes. For example,
if you state that you are happy for your information to be used then you later decide that you object, tell your GP and the HSCIC will then ensure that
any information they have from your GP practice and that could identify you is removed.
Information from GP practices will begin to be extracted and sent to the HSCIC in the autumn 2013. The GP data will be linked with the hospital data
already held by the HSCIC.
For more information about how data is collected and shared, including confidentiality, read the Q&A below or download the FAQ for patients (PDF, 153kb)
produced by the HSCIC and NHS England.

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